Call for Health Care Providers to Advocate for Disability Rights During COVID-19

A recent paper highlights concerns around access to medical treatment and medical rationing decisions for people with disabilities during the COVID-19 pandemic.

3:06 PM

Author | Kylie Urban

stethoscope drawing in blue ink on lined paper with yellow badge in bottom corner in blue font saying lab note

A recent commentary piece, authored by five psychologists from across the United States, calls for health care providers to advocate for the rights of patients with disabilities during the pandemic.

The authors explain that people with disabilities not only have increased vulnerability to exposure of, and complications from, the COVID-19 virus, but concerns in accessing proper treatment for the virus and the decision-making behind medical rationing.

"While we hope that care options for COVID-19, such as mechanical ventilators and intensive care unit beds, will not have to be rationed, there has certainly already been concerns during the pandemic of a shortage in some lifesaving equipment," says Carrie Pilarski, Ph.D., a clinical psychologist and assistant professor of physical medicine and rehabilitation at Michigan Medicine, and an author of the commentary. "This is increasingly concerning for the disability community in that, would they be overlooked for treatments if it came down to medical rationing?"

Pilarski and her fellow authors discuss perceptions people may have of the disability community, and explain medical rationing and offer approaches for prioritizing patients.

"People may not realize that medical rationing already happens, such as organ transplantation and who is eligible," Pilarski says. "We explain the different methods that can be used in medical rationing, and how the most important element in any method chosen is transparency. There needs to be transparency in decision-making, ability for appeals and procedures in place for revising decisions."

The authors also encourage health care providers, specifically their fellow psychologists, to advocate for social justice for people with disabilities during the pandemic, and in health care settings in general.

"Health care providers should call for transparency in pandemic preparedness plans and medical rationing approaches," Pilarski says. "Disabilities are a part of diversity, and not an indicator if someone should or should not receive lifesaving treatment."   

Paper cited: "No Body Is Expendable: Medical Rationing and Disability Justice During the COVID-19 Pandemic," American PsychologistDOI: 10.1037/amp0000709


More Articles About: Lab Notes Covid-19 Demographics Health Care Delivery, Policy and Economics Health Care Quality Physical Medicine & Rehabilitation infectious disease
Health Lab word mark overlaying blue cells
Health Lab

Explore a variety of healthcare news & stories by visiting the Health Lab home page for more articles.

Media Contact Public Relations

Department of Communication at Michigan Medicine

[email protected]

734-764-2220

Stay Informed

Want top health & research news weekly? Sign up for Health Lab’s newsletters today!

Subscribe
Featured News & Stories Health care provider with stethoscope holds patient's hand
Health Lab
Opinion: Hospice care for those with dementia falls far short of meeting people’s needs at the end of life
An end-of-life care specialist discusses the shortfalls of hospice care coverage for people with dementia, using the experience of former President Jimmy Carter and former First Lady Rosalynn Carter as examples.
Illustration of doctor pictured outside a pill bottle that houses a bent-over figure with pills lying on the ground
Health Lab
It’s easier now to treat opioid addiction with medication -- but use has changed little
Buprenorphine prescribing for opioid addiction used to require a special waiver from the federal government, but a new study shows what happened in the first year after that requirement was lifted.
Pill capsule pushing through a paper with amoxicillin printed on it.
Health Lab
Rise seen in use of antibiotics for conditions they can’t treat – including COVID-19
Overuse of antibiotics can lead bacteria to evolve antimicrobial resistance, but Americans are still receiving the drugs for many conditions that they can’t treat.
marijuana leaf drawing blue lab note yellow badge upper left corner
Health Lab
Data shows medical marijuana use decreased in states where recreational use became legal 
Data on medical cannabis use found that enrollment in medical cannabis programs increased overall between 2016 and 2022, but enrollment in states where nonmedical use of cannabis became legal saw a decrease in enrollment
Photo of hand gripping the bannister on a stairway
Health Lab
Addressing fall risks in people with multiple sclerosis
Among people with multiple sclerosis in the United States, more than half experienced at least one fall in a six-month period and approximately one-third of those falls resulted in an injury.
Illustration of prescription bottle with a refill notice
Health Lab
In drive to deprescribe, heartburn drug study teaches key lessons
An effort to reduce use of PPI heartburn drugs in veterans because of overuse, cost and potential risks succeeded, but provides lessons about deprescribing efforts.